Sometimes it becomes a way of blaming disabled people for things that aren’t our fault, of not looking at the impact of policies or of not seeing a full picture. Sometimes it seems like a way to pass the buck, or a way to deal with tension between disability rights/justice, and disability services, which are… Continue reading Self advocacy is critical, and…
Sometimes I just feel behind. I look at all I want to do and the level of support I need that before my mother died I didn’t spend time thinking was “too much” as much and now has piecemeal responses stitched together instead of vibrant help. My disability, as a result, can often feel overmagnified… Continue reading How I am sometimes
I believe that movement is important because it connects us all to our bodies. This is a hard thing for a lot of disabled people. We’ve often been disconnected from them by trauma, therapies and discrimination due to disability, racism, or other things many of us face. All this leads to more pain and a… Continue reading Groove Certification
Tonio was the biggest fan of Scooby Doo that I have ever seen. He knew all the episodes that mattered to him and could retell them better than any television writer. He was a funloving, lanky teen who was always making me laugh. He could remember television and movie dialogue incredibly well, which was a… Continue reading Tonio and Christy
Hi everyone, I am working on launching the Functional Nutrition services and looking at information on dysautonomia and related conditions to share with you. In this spirit, here is an article on the importance of choline and betaine for POTS. I have started taking betaine and finds it helps my blood pressure and digestion. Hope… Continue reading Step right up for Choline!
Myra and I would often sit outside together. We both liked to sing, so I would sing a song and then she would, clapping to her own beat. I liked that she was an individual, and I often wondered what she thought about. Singing was her main way of communicating, and she could also really… Continue reading Myra and everyone
Because my POTS was caused by an infected stage 4 pressure sore that nearly killed me, it has been on my mind that disabled people and those who care about us need support around pressure sore prevention and treatment. With this in mind, I am starting a course on this to coincide with the launch… Continue reading Pressure sores matter! Come join my future course
I am dyscalculic. This means I am learning disabled in math. It also means I and other dyscalculics: Struggle with sequencing, timing, scheduling and certain details May not remember these as well if too many details are involved or rapidly changing. Struggle with executive functioning Frequently experience visual and mental fatigue when doing things involving… Continue reading The sun will come out tomorrow/Dyscalculia