Myra and I would often sit outside together. We both liked to sing, so I would sing a song and then she would, clapping to her own beat. I liked that she was an individual, and I often wondered what she thought about. Singing was her main way of communicating, and she could also really… Continue reading Myra and everyone
Category: Uncategorized
Pressure sores matter! Come join my future course
Because my POTS was caused by an infected stage 4 pressure sore that nearly killed me, it has been on my mind that disabled people and those who care about us need support around pressure sore prevention and treatment. With this in mind, I am starting a course on this to coincide with the launch… Continue reading Pressure sores matter! Come join my future course
The sun will come out tomorrow/Dyscalculia
I am dyscalculic. This means I am learning disabled in math. It also means I and other dyscalculics: Struggle with sequencing, timing, scheduling and certain details May not remember these as well if too many details are involved or rapidly changing. Struggle with executive functioning Frequently experience visual and mental fatigue when doing things involving… Continue reading The sun will come out tomorrow/Dyscalculia
Thao and I
Trigger Warning for extreme child abuse/trauma Note: When my mom was alive, she said I should write stories of the kids I went to school with when going to the school for disabled kids. Here is the most important to me. ********************************************************************** Looking through things I felt were important to keep in the sixth grade,… Continue reading Thao and I
This is really cool! Go, this! Amen to accessible recreation! :)
How to live with a chronic illness
Functional Nutrition Certification has landed!
I have just completed Functional Nutrition Counseling Certification through Andrea Nakayama’s Functional Nutrition Alliance! Functional Nutrition looks at a person’s health issues through an empathic, practical lens that allows people to work through health challenges and get greater resolution. It is science based with a focus on knowing body processes for various body systems and… Continue reading Functional Nutrition Certification has landed!
Food access, revisited
I have received a lot of positive responses to the “Garlic in a Jar” post and the article that inspired it, so I’ve been thinking. This shows that food access and accessibility are big issues for a lot of us, and especially those of us with chronic illnesses. This dovetails into a lot of what… Continue reading Food access, revisited
Music break
For when it’s really hard
