Myra and I would often sit outside together. We both liked to sing, so I would sing a song and then she would, clapping to her own beat. I liked that she was an individual, and I often wondered what she thought about. Singing was her main way of communicating, and she could also really… Continue reading Myra and everyone
Pressure sores matter! Come join my future course
Because my POTS was caused by an infected stage 4 pressure sore that nearly killed me, it has been on my mind that disabled people and those who care about us need support around pressure sore prevention and treatment. With this in mind, I am starting a course on this to coincide with the launch… Continue reading Pressure sores matter! Come join my future course
The sun will come out tomorrow/Dyscalculia
I am dyscalculic. This means I am learning disabled in math. It also means I and other dyscalculics: Struggle with sequencing, timing, scheduling and certain details May not remember these as well if too many details are involved or rapidly changing. Struggle with executive functioning Frequently experience visual and mental fatigue when doing things involving… Continue reading The sun will come out tomorrow/Dyscalculia
Thao and I
Trigger Warning for extreme child abuse/trauma Note: When my mom was alive, she said I should write stories of the kids I went to school with when going to the school for disabled kids. Here is the most important to me. ********************************************************************** Looking through things I felt were important to keep in the sixth grade,… Continue reading Thao and I
Aging and Disability
This is really cool! Go, this! Amen to accessible recreation! :)
Tea Break!
Because it just can’t be all intensity, all the time. Peace, everybody. Check this out: (and thanks, enchantress lands)
YOU are valuable!
I was talking to a friend today and she said that people’s responses to my care needs and any resentments about them, are about the person having them. It is so easy for me (and other disabled people) to take that personally and ramp up our appreciation efforts, etc. To say thank you more, even… Continue reading YOU are valuable!
